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Talk to the research team

Whether your family is thinking about joining the registry, you have a question about banking a sample, or you would like to work with the data — this reaches the people who run it.

I’m writing as

We use your details only to reply to you. We never sell them or pass them on for marketing. How we handle your information

Referring a patient? Clinicians have their own form.

Prefer email?
ihopekids@bcm.edu
If time matters
A DNA sample is best collected within about a year of a loved one’s passing. Say so in your message and we will reply to that first.
Anything else
Workshops, volunteering, the press — the general contact page.