Registry
The iHOPE-Kids Registry
Studying children with rare heart-rhythm disorders together — not one by one — helps doctors find causes and better care.
See our published researchWhere the thread begins
What brought your family here?
Choose the one closest to yours.
Still searching
“We don’t have an answer yet”
Who can join
Anyone with an unexplained or undiagnosed heart-rhythm disorder — living or deceased.
After a loss
“We lost someone suddenly”
Who can join
Families who lost someone to a sudden, unexplained cardiac event.
A sample is best collected within about a year, so it is worth asking early.
Already diagnosed
“We have a diagnosis”
Who can join
People already diagnosed with an arrhythmia.
A known condition can still reveal a wider pattern.
Children and adults alike. Participants from any country.
Your thread joins here
How enrollment works
- 1
Complete a consent form
Tell us how your sample and information may be used — you stay in control throughout.
- 2
Share basic medical information
A bit of history, so your case can be studied alongside similar ones.
- 3
Submit a DNA sample
A simple blood draw or cheek swab is all it takes.
- 4
Receive collection instructions
We send step-by-step instructions and the biobank address at Texas Children's Hospital.
- 5
Optionally, add a family sample
Sometimes a relative's sample helps reveal inheritance patterns.
Your thread joins here
How enrollment works
1 / 5- 1
Complete a consent form
Tell us how your sample and information may be used — you stay in control throughout.
- 2
Share basic medical information
A bit of history, so your case can be studied alongside similar ones.
- 3
Submit a DNA sample
A simple blood draw or cheek swab is all it takes.
- 4
Receive collection instructions
We send step-by-step instructions and the biobank address at Texas Children's Hospital.
- 5
Optionally, add a family sample
Sometimes a relative's sample helps reveal inheritance patterns.
DNA biobank
Preserve the chance to find answers
Biobanking stores a DNA sample — from a blood draw or cheek swab — so genetic testing is possible now, or later as the science advances.
SPECIMEN · STORAGE
TEXAS CHILDREN’S HOSPITAL
HOUSTON, TX · −80°C
Timing matters
Samples are best collected within about a year of a loved one's passing. After that, DNA can degrade and may no longer be testable. A coroner or medical examiner can often help collect one — ask early, since retention timelines vary.
One family’s thread.Everyone’s answer.
Studying children with rare heart-rhythm disorders together — not one by one — helps doctors find causes and better care.