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iHOPE-Kids in the news

Coverage of our work to find answers for children with rare heart-rhythm disorders.

A family heart condition, diagnosed in time

After 17-year-old Sammy Berko survived a cardiac arrest, genetic testing revealed CPVT — the rare, inherited rhythm disorder that had taken his younger brother years earlier. A patient of iHOPE-Kids co-founder Dr. Miyake, his story shows why testing can protect a whole family.

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More coverage

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Baby Ray's Legacy: Advancing Rare Disease Cures Through Collaboration

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Voices of Resilience: Women Leaders in the Rare Disease Community

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Interview with the SADS Foundation

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